Monday, February 06, 2012
Forum Minimize
 
ForumForumDiscussionsDiscussionsSURVIVOR Storie...SURVIVOR Storie...Systemic Lupus ErythematosusSystemic Lupus Erythematosus
Previous Previous
 
Next Next
New Post
 1/25/2009 7:54 PM
 

I was diagnosed with SLE( Systemic Lupus Erythematosus) when I was eighteen years old. I broke out in a butterfly rash on my nose and what looked like little bumps all over my hand. It took five different doctors and a lot of test that were uncalled for when they found out that I did in fact have SLE. Some of the test included a lot of bloodwork and a biopsy of one of the bumps on my hands. I was sent to a dermatologist, my primary care and finally a rheumatologist before being diagnosed. I went through a lot of emotions during this time including fear, anger and frustation. At the time of the diagnosis I was uncertain of everything that having SLE entailed. Thankfully my parents being as supportive as they were help me with research and doctors appointments. My SLE stayed under control until I was about twenty-two years old and I gave birth to my first daughter. Toward the end of my pregnancy my blood pressure skyrocketed and my kidneys became less and less productive. About a year and a half later I had full blown Lupus Nephritis, which means that my Lupus was attacking my kidneys. I gained about seventy-five pounds in water weight and had to be admitted into the hospital.  I underwent about fourteen months of oral chemotherapy and high doses of steroids. The adjustments that I have had to make due to my Lupus are an overall better lifestyle. I really have to watch what I eat and how much I exert myself and try to stay as far away from people who are sick as I can . The hardest adjustment I made was not being able to really keep up with my two-year-old daughter for about two years. Thankfully my parents, husband and family have been here from the beginning and I know what I need to do in order to keep my Lupus in remission. I am currently on the road to recovery and in full remission. I am very happy to be able to write this biography and be well enough to help educate and support others that have SLE.

Previous Previous
 
Next Next
ForumForumDiscussionsDiscussionsSURVIVOR Storie...SURVIVOR Storie...Systemic Lupus ErythematosusSystemic Lupus Erythematosus

*You must be a registered member of this site and logged in to make posts to this forum
Kidney Donor Needed Minimize

One of our Lupus Survivors is greatly in need of kidney replacement. Maybe you can help.

More Information

One of our Lupus Survivors is greatly in need of kidney replacement. Maybe you can help.

More Information

Lupus - No Known Cause, No Known Cure... Let's Find One
Lupus - No Known Cause, No Known Cure... Let's Find One
© 2010 LiFE WithOut Lupus Web Site Solution by Alt Apps Terms Of UsePrivacy Statement